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Tuesday, 28 July 2009 14:46

Dylan Moore succumbs

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Dylan Moore, the young Roanoke Valley area child with a rare genetic disorder, died Sunday. In a short journal entry on the Web site detailing the child’s struggles it is simply written: Dylan is gone.

The Web site is: http://www.caringbridge.org/visit/dylanmoore

The child’s health was beginning to decline in the last few days. The last journal entry on July 24 notes, “The MRI revealed no blockages today so the docs are assuming that it’s GVH.  Only way to tell for sure is to do a liver biopsy!  Docs are not in agreement that he is stable enough for that.  We’ll have to see how he progresses in the next few days and if he’s better, they may try to do it early next week.”

Moore was diagnosed with fanconi anemia, a very rare genetic disorder with a very high frequency of bone marrow failure and many other problems, in September of 2004.

Patients with FA have a 75 percent chance of developing solid tumors at unusually young ages, including head, neck, esophagus and squamous cell carcinomas, as well as liver tumors, according to the Web site.

The Web site says over the last few months, his bone marrow failure had progressed to severe, leaving him vulnerable to possible life threatening infections and internal hemorrhaging.

News of the child’s death prompted numerous signings on his guestbook, from both people locally and across the nation.

“Dylan has made me look at life in such a different perspective, he has made me realize that giving up is not an option, you have to fight, no matter how tough times get,” one entry said. “He is truly a hero to me. I will miss him dearly, and always remember what a strong, tough, kind, and loving boy he was.”

Read 3467 times Last modified on Thursday, 29 July 2010 16:42